John and Aileen Crowley were on top of the world. With John’s brand-new Harvard Business School degree, a great job, and three beautiful children, they thought they finally had it all. Then their two youngest children were diagnosed with Pompe disease – a muscular disorder so rare that no company had yet developed a medicine for it. Overnight, everything changed. The children were given only months to live. But John Crowley refused to accept fate. ...